I need to hear from you, the Parents, Caregivers, Seniors and Tenants. I have been planning this site for a very long time. I know at times you are frustrated of being ignored, no one listening to what you are saying. or, you are afraid to let people know what you are really feeling or ashamed to talk about your Special Needs child or adult? Well I will start. I am the Legal Guardian of my Grandson. He has been with me since the age of three. He is now 25 years old. At Birth the Dr’s gave him 48 hours to live. They had no idea that God was in charge. My Grandson was born with an Unbalanced Chromosome translocation resulting in duplication/Trisomy of Chromosome 6q23 and deletion/Monosomy of 10q26, global developmental delay, Hypertrophic Cardiomyopthy, prolonged QT syndrome. Asthma and GERD. He has had numerous Hospitalizations for his medical condition and Urinary Tract infections. He is on multiple Medications for his Asthma, Cerebral Palsy, seizures and G-Tube feedings with reflux. He cannot walk or talk however, he says Grandma. He wakes up with a smile, he acts like a teenager. His heart is beating, he cries, he laughs, he feels pain, he will also let you know if he likes you?
Okay, Now let me hear from you?